just wanted to know what sort of work was involved with having an 11 month old baby with hypotonia (low muscle tone) which they think has only affected her from her neck up to her throat,nose and ears and also sleep apnea…. she has a ct scan booked and is being admitted to hospital in a few days!!! also getting bloods tested for about 12 different things…just wanted to know what other mothers/fathers went through so i know what to expect in the next few weeks/months/years and dont completely break down….
thanks

common knowledge or something, but i thought they are two totally different things???

thanks, and may the force be with you,

just wanted to know what sort of work was involved with having an 11 month old baby with hypotonia (low muscle tone) which they think has only affected her from her neck up to her throat,nose and ears and also sleep apnea…. she has a ct scan booked and is being admitted to hospital in a few days!!! also getting bloods tested for about 12 different things…just wanted to know what other mothers/fathers went through so i know what to expect in the next few weeks/months/years and dont completely break down….
thanks

sleep apnea. For the last few years I have been sleep
walking. I do alot of different things in my sleep & appear to others as if Im awake, but I never have any recollection of it, others tell me.

Im tired all day I cant go to bed early because I will wake up every 2 hours. But even if I get 7 hours of sleep Im still tired all day. Then mid-day around 1 or 2, It is terribly hard for me to stay awake. In my last job I would start nodding out so I would just lay my head down & take a nap comfortably. With my new job, I cant do that. But that doesnt stop me from nodding out!

Ive been having to drive in the middle of the day for my job and even still, I nod out. Its getting worse, just on Thursday I had a 45 minutes drive and came way too close to having 6 or 7 different accidents. Its very scary, Ive been waking up just at the right time. And it doesnt matter what I do, I cant stay awake.

My memory has also been awful and I have a headache at least 5 days a week.
Please give me any information you can. And if you need more details let me know & i will post. Oh & I also have an overactive bladder. and often have very vivid dreams, i dont think they could be called nightmares, but sometimes scary. Oh and bad back pain, which probably has nothing to do with it, but thought id let u know.

THANKS SO MUCH,

MANDEE
do you wake up gasping for breath? Do you snore loudly? Do your feet swell, especially the tops? Are you overweight? Have you had your tonsils taken out? Do you smoke, and drink, or both? What is your blood pressure? Do you find that you sleep better sitting up?

No i dont gasp, I dont snore, im actually about 20lbs underweight, my feet dont swell, I do smoke , i drink but only occasionally , my blood pressure is around low 100's/80's or 90's. and i rarely try to sleep sitting up if so its only breifly after nodding out. A guy at work who has it told me this. he has 4 out of 7 factors?