just wanted to know what sort of work was involved with having an 11 month old baby with hypotonia (low muscle tone) which they think has only affected her from her neck up to her throat,nose and ears and also sleep apnea…. she has a ct scan booked and is being admitted to hospital in a few days!!! also getting bloods tested for about 12 different things…just wanted to know what other mothers/fathers went through so i know what to expect in the next few weeks/months/years and dont completely break down….
thanks

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